Empower independence and spreading joy for those with Spinal Muscular Atrophy by providing comprehensive support, advocacy, and access to critical resources
Why support SOAR?
Living with Spinal Muscular Atrophy (SMA), a severe neurodegenerative disease, brings immense challenges. It often requires intensive physical therapy and many other resources to ensure adequate support for affected individuals. Unfortunately, these needs are not always fully met. The financial strain of treatment, the mental health impact, and the limited understanding of SMA in a person’s environment can each affect the quality of life for someone with this condition.
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Our organization, SMA Outreach and Awareness Resource (SOAR), is committed to addressing the many challenges faced by individuals with SMA by providing comprehensive support, advocacy, and access to essential resources. We collaborate with SMA Vietnam, a non-profit partner, to fundraise and distribute financial aid to underprivileged communities affected by SMA. Thanks to the favorable exchange rate between the U.S. dollar and the Vietnam dong, the funds raised have a significantly greater impact, ensuring that the support provided is maximized.
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In addition to financial assistance, SOAR directs various programs aimed at supporting the emotional well-being of individuals with SMA. Our awareness campaigns and dedicated support systems help create a sense of community and empowerment. One such initiative is our SMA Support Mate Buddy Program, which fosters emotional connections and provides vital companionship by pairing SMA individuals with trained support partners. Through these efforts, we strive to improve the quality of life for individuals with SMA and work towards a future where everyone receives the support they deserve.
Justin's Story
Justin is one of the many children who have SMA. While he was fortunate enough to survive, the disease has still left him severely weakened, causing him to not be able sit or stand. "It's frustrating sometimes," says Justin, "when I need help or want to get somewhere, and I just can't. I'd love to be able to stretch in bed, or feed myself. I like my life as it is, but being able to get rid of my disability would mean the world to me." It's essential to make contributions to the SMA community so that people like him can have a better life.

What We Do
Advocating
Spreading SMA's awareness through our events and social media
Fundraising
Actively raising money to support SMA's research and give meaningful gifts to those affected by it