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Our Work

Some of our past fundraising and awareness initiatives are shown below. SOAR strives to continue creating more events to make a difference for those with Spinal Muscular Atrophy.

Jan 5th - Feb 2nd 2024

Spreading Luck

Amount Raised: $1000

During Lunar New Year, it is a tradition to give lucky money, called "Li Xi," and toys to children. However, for families already struggling with the cost of raising a child with SMA in Vietnam, affording such gifts is challenging. SOAR partnered with SMA Vietnam, a non-profit organization with similar dedication to SMA patients, to raise $1000 to lessen their financial troubles during this holiday season. We were able to succeed in our mission to give them a better New Year.

Children with SMA with the lucky money provided by SOAR

Aug 1st - Aug 21st 2024

SMA Awareness Month 

Interviews with Those in The SMA Community and Their Supporters

To celebrate, SOAR met with three inspiring individuals to share their powerful stories about SMA's impact and showcase the resilience of those with the condition when discussing how they soared above their challenges. These extraordinary people were Justin Nguyen, a tenacious child with SMA, Tracy Nguyen, leader of SMA Vietnam, and Dr. Crawford, a pediatric neurologist specializing in SMA treatment. 

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SMA Awareness Month 2024 Interviews

Justin NguyenIndividual with SMA
00:00 / 07:54
Tracy Nguyen Interview RevisedSMA Vietnam Rep
00:00 / 20:15
Dr. CrawfordPediatric Neurologist
00:00 / 20:59
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